Publications

Our Publications section only includes reports/ guidelines/ publications of broad or overarching influence to autism research in the Australasian region and is updated 1-2 times per year. 

If you think a publication is of relevance and importance to the Australasian autistic and autism research communities, please email our Webmaster Iliana Magiati at iliana.magiati@uwa.edu.au with your recommendation and justification as to why this publication may be important for us to include on our website. The Webmaster and/ or another Executive Committee member will review your recommendation and consider including it in our list in the next website update, or will post about the publication in our social media.

Autism Research Priorities & Research Funding

Australasian Autism Research Council – Australian Autistic People’s research priorities
https://www.autismcrc.com.au/aarc

Listening to parents to understand their priorities for autism research (2020)
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0237376

A portfolio analysis of autism research funding in Australia 2008-2017
https://pubmed.ncbi.nlm.nih.gov/31375971/

Annual Research Review 2021- Shifting from “normal science” to neurodiversity in autism science: https://acamh.onlinelibrary.wiley.com/doi/full/10.1111/jcpp.13534

Emerson, L. M., Pellicano, E., Monk, R., Lim, M., Heaton, J., & McLay, L. (2023). A portfolio analysis of autism research funding in Aotearoa New Zealand 2007–2021. Autism, 27(8), 2256-2268. https://doi.org/10.1177/13623613231155954

Emerson, L.M., Monk, R., van der Meer, L., & McLay, L. (2022). Autistic co-led autism research priorities for Aotearoa New Zealand: A partnership with Autistic people, families and wh•nau, service and support providers, and researchers. Christchurch: Te Whare W•nanga o Waitaha | University of Canterbury

 

Participatory Research & Use of Language

Language Choices
https://www.autismcrc.com.au/language-choice
https://pubmed.ncbi.nlm.nih.gov/32112234/
https://www.liebertpub.com/doi/pdf/10.1089/aut.2020.0014
https://autismnz.org.nz/autism-new-zealand-terminology-guide/

Inclusive/ Participatory research
https://www.autismcrc.com.au/knowledge-centre/resource/inclusive-research
https://www.spectrumnews.org/news/six-steps-to-engaging-in-participatory-autism-research/

Academic and community perceptions of participatory autism research (2021)
https://pubmed.ncbi.nlm.nih.gov/32854511/

 

Autism Prevalence in Australasia/ National Statistics relating to Autism

Australian Bureau of Statistics 2017 Autism in Australia
https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/4430.0Main%20Features752015

An Integrated Data Infrastructure-based approach to autism spectrum disorder research in New Zealand (2020)
https://journals.sagepub.com/doi/full/10.1177/1362361320939329

Prevalence of autism in Asia (2020)
https://pubmed.ncbi.nlm.nih.gov/31735373/

Autism in South Asia (2017)
https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-017-1440-x

 

Clinical Practice Guidelines, reports or reviews

National Guidelines for the Assessment and Diagnosis of Autism (Australia, 2023)
https://www.autismcrc.com.au/knowledge-centre/resource/national-guideline

Whaikaha – Ministry of Disabled People and Ministry of Education. 2022. Aotearoa New Zealand Autism Guideline: He Waka Huia Takiwātanga Rau: Third edition. Wellington: Whaikaha – Ministry of Disabled People. https://www.whaikaha.govt.nz/about-us/policy-strategies-and-action-plans/nz-autism-guideline

Living Guideline Group: keeping the ASD Guideline up to date
https://www.health.govt.nz/our-work/disability-services/disability-projects/autism-spectrum-disorder-guideline/living-guideline-group-keeping-asd-guideline-date

National Guideline for supporting the learning, participation, and wellbeing of autistic children and their families in Australia, 2022 (https://www.autismcrc.com.au/access/supporting-children

Indigenous People & Autism

Indigenous Australians and Autism: a scoping review
https://pubmed.ncbi.nlm.nih.gov/31928063/

Maori and Autism: A scoping review
https://journals.sagepub.com/doi/abs/10.1177/13623613211018649?journalCode=auta

 

There is substantial high quality autism research published by autistic and autism researchers based in Australia, New Zealand and other Australasian countries every year! If you want to find their work, you can search for autism research studies in PubMed published in a particular country by entering the search term autis* AND (name of country) followed by [Ad].